Our 13 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy.
HEY Julie
ReplyDeletei dont ask you often enough but i am always intersted in Jack and how he is doing and how you are handling things- I will always listen!
Love, Victoria
Thanks Victoria- I do appreciate the thoughtfulness. Most of the time we are okay-just every now and then I think-Wow! I feel like a failure-feel like I need to be better about pursuring options etc... but it's exhausting and he need to be a normal kid too. Can't keep subjecting him to all the testing etc.. At least he is on "therapies" we believe do help and slow progession. We do know a lot of people are praying for him and that means more than anything. Thanks
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